The Children’s Clinic serves a diversity of patients from around the Portland Metropolitan Area. While every one of our patients is special, from time to time there are patients with a touching or impactful story we like to share. The following is just a small selection of those stories. If you have a story you’d like to share with our community, please fill out the Contact Form or send us an email.

Step Forward to Cure Tuberous Sclerosis Complex

I had been an obstetrical nurse in a high risk unit for 13 years when I noticed our daughter of 4 months experiencing seizure like symptoms. I was in disbelief, pacing the hallways for several seconds with an acute awareness that what I had witnessed was not normal and was indeed a seizure. Our pediatrician sent us directly to Emanuel Hospital and after several tests including an MRI and EEG, she was diagnosed with a disorder called TSC or Tuberous Sclerosis Complex. The diagnosis came after we were asked by the neurologist to come into a private hospital room directly across the hall from our sleeping little girl, heavily medicated from her first of many seizure medications. I don’t think that I will ever forget that moment when my husband and I asked, “Are you telling us that there is no cure?” The answer was devastatingly, “No.” Time stopped for us at that moment. Pain and intense concern for our daughter’s well-being and quality of life hit us like an emotional tidal wave. We immediately thought of our six year old son, who was in the care of one of his loving grandparents, while we took in the troubling news. How would this life change affect him?

TSC is a generic disorder that causes benign tumors to grow in the brain and other vital organs such as the kidneys, heart, eyes, lungs, and skin. At least two children born each day will have Tuberous Sclerosis Complex. The prognosis for individuals with TSC depends on the severity of the symptoms. Individuals with mild symptoms generally do well and live long productive lives, while individuals with the more severe form may have serious disabilities. Scientists hope knowledge gained from their current research will lead to new avenues of treatment, methods of prevention, and, ultimately, a cure.

Sophie had a challenging first two years of her life, with daily seizures, frequent trips to the hospital/specialists, and delayed development. There is hope though. After two brain surgeries at UCLA Mattel Children’s Hospital, Sophie is virtually seizure free! With the support of family/ friends, medical intervention, and prayer, she is progressing in her development everyday and enjoying life immensely. With a parent in the classroom, she will attend mainstream preschool this fall. She is a joy to us all. Her big brother loves making her laugh with his nine year old sense of humor and provides a great example of what it means to be a regular kid.

Unfortunately, Sophie does have other tumors that can cause all kinds of calamities. We continue to think positively that things will remain as good as they are now. In the event that they do not, we hope to rely on the medical advances through research that provide hope and quality of life to so many individuals with TSC. Please feel free to make a donation by visiting our FirstGiving page at http://www.firstgiving.com/fundraiser/jami-flicker/step-forward-to-cure-tsc-tigard-or?fge=ask.

Sincerely,
Kasey, Jami, Jaden & Sophie Flicker

Sophie Flicker
http://childrens-clinic.com/sites/default/files/fwunixref.pdf
Jami Flicker, RN
Monday, May 2, 2011

A Letter to the Doctor’s at TCC

Dear Sirs:

In 1956 your clinic was in Southwest Portland, I knew it well! Your staff at that time if I can remember them all were Dr. Bilderback, Dr. George Nash, Dr. Alvin Wert, Dr. Goodnight, and the business manager Mr. Al Versteeg. I knew it well as I said, Dr. Nash was our Dr., But all the rest were there for us to.

We had three children and were at the clinic often, our third child was born with congenital heart defects three to be exact. So you can imagine the number of visits we had. My husband Bob was still and apprentice painter, so we made very little money and our bills kept mounting to the point that one day I came in with one of our children and cried because I didn’t even have $5.00 to put on our mounting bill. Dr. Nash told me not to worry.

Then one day our phone rang and Bob got a call from Mr. Versteeg (boy were we scared) it turns out that Dr. Nash went to a staff meeting and told the other Dr’s of our dilema and that Bob was a painter, they agreed to give Bob a try at painting the interior of the clinic after he did the first exam room they were pleased with his work and kept him on Bob could only work week ends so it took about two years. Again Bob got a call from Mr. Versteeg asking him to come in a little early that Friday night Mr. Versteeg ask Bob to sit down he wanted to show him the books. Bob was so worried. Then Mr. Versteeg smiled and said we were all paid up and handed Bob a check. They ask him to continue to work for them and Bob was happy to do it.

The same Dr’s started having him paint for them in their homes.

All this experience helped Bob to eventually start his own business.

This letter is intended to be a tribute to some wonderful Dr’s they were kind and caring and helped a young couple when they were going through one of the hardest times in their lives. When the youngest one needed surgery when he was 3 years old they all came in on there day off. We lost Ronnie when he was 13 months old.

This letter is long overdue I know we said thank you to them I feel this letter should have been written then, but even though some of the Dr’s are now gone I want you to know they are still our hero’s. We were truly blessed to have known these men. These memories will be with us for life. I hope you are continuing in the ways of the founders of The Children’s Clinic and may God bless you all.

Sincerely,

Alice

Alice
Tuesday, March 22, 2011