Care Coordination
Managing a child with complex medical needs means juggling multiple specialists, appointments, referrals, and questions, often all at once. Our Care Coordination team is here to help carry that load. We work alongside your family and your child's providers to make sure nothing falls through the cracks, and that you always know what's happening and what comes next.
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What Care Coordination Looks Like
Coordination
When your child's care involves multiple providers, keeping everyone on the same page is a full-time job. Our CC team manages communication across all involved providers so your family isn't the one passing information back and forth between specialists.
Connection
We serve as the link between your family, your child's primary care provider, and their broader healthcare team. That means tracking referrals and test results, coaching families through next steps, supporting transitions in care, and keeping communication flowing, in both directions.
Planning
Every patient receiving Care Coordination gets a written care plan that becomes part of their permanent electronic health record. It's a living document that keeps your child's full picture in one place and accessible to every provider involved in their care.
Is Care Coordination right for your family?
Our team identifies patients for Care Coordination based on a combination of factors. Your child’s primary care provider will determine if Care Coordination is appropriate — but families who often benefit include those navigating:
- Complex or chronic health conditions requiring multiple specialists
- Frequent hospitalizations or transitions between care settings
- Social circumstances that make accessing care more challenging
- Multiple ongoing referrals, tests, or follow-ups to track
Meet the Care Coordinators
Our dedicated Care Coordination team works closely with your child's providers to guide your family through every step of care.
Autism Resources
ADEPT – Autism Distance Education Parent Training
Interactive self-paced online learning modules teaching parents ABA tools to support functional skill development
Autism Society of Oregon
A nonprofit organization that provides resources, education, advocacy, and support for autistic individuals and their families throughout Oregon
Family Echo
A series of 75-minute sessions to help families understand and manage challenging behaviors and build supports for children with autism
Help Is in Your Hands
Free evidence-based parent coaching program based on the Early Start Denver Model to increase social interactions and communication, accessible on mobile
Mirror Me – Reciprocal Imitation Training
Free online modules teaching caregivers Reciprocal Imitation Training (RIT), a play-based intervention to improve social, communication, and imitation skills
Project Impact – OHSU
Parent-coaching program at OHSU for families of children with autism or social communication challenges. Requires a referral from your child's provider.
RDIconnect
Program teaching parents how to guide their child and succeed in reciprocal relationships
Seattle Children’s – Conversations About Autism
YouTube series from Seattle Children's Hospital featuring conversations about autism for families
Triad Families First Program
Free online caregiver training modules using play-based intervention to improve social, communication, and imitation skills in children with ASD
Cerebral Palsy Resources
American Academy for Cerebral Palsy and Developmental Medicine
Multidisciplinary scientific education for health professionals and promotion of excellence in research and services for people with cerebral palsy and childhood-onset disabilities
CP Family Network
Support network and resources for families of children with cerebral palsy
United Cerebral Palsy
Leading source of information on cerebral palsy and advocacy for the rights of persons with any disability
Down Syndrome Resources
Down Syndrome Network of Oregon
Local resource offering community-based programs and support for families, friends, and individuals with Down syndrome in Oregon
Gigi’s Playhouse Portland
A nonprofit Down Syndrome Achievement Center that offers free educational, therapeutic, career development, and social programs for individuals with Down syndrome of all ages.
Karen Gaffney Foundation
Dedicated to championing full inclusion for people with Down syndrome or other developmental disabilities in families, schools, communities, and the workplace
National Association for Down Syndrome
Information, support, and advocacy for individuals with Down syndrome and their families
National Association for Down Syndrome
Spanish-language information, support, and advocacy for individuals with Down syndrome and their families
Northwest Down Syndrome Association
Regional organization providing support, resources, and advocacy for individuals with Down syndrome and their families in the Pacific Northwest
Northwest Down Syndrome Association
Regional organization providing support, resources, and advocacy for individuals with Down syndrome and their families in the Pacific Northwest
Education/Health System Navigation Resources
Fact Oregon
FACT Oregon is a nonprofit organization that empowers families, youth, and communities to navigate disability systems through education, advocacy, and support.
Help Me Grow
Help Me Grow Oregon is a free family support and resource navigation program that connects Oregon families with services related to child development, health, behavior, learning, and early intervention.
OHSU Family to Family
The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems.
Swindells Resource Center
Swindells Resource Center supports parents and caregivers of children who have special needs, developmental delays or disabilities.
The Arc
The Arc is a national nonprofit organization that advocates for and supports people with intellectual and developmental disabilities (IDD) and their families.
Frequently Asked Questions
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How does my child get referred to Care Coordination?
Patients are identified for Care Coordination by their primary care provider based on their medical complexity, chronic health needs, or social circumstances. If you think your child might benefit, talk to your provider at your next visit.
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What does a Care Coordinator actually do day-to-day?
Your Care Coordinator communicates with your child's specialist teams, helps with transitions between care settings, writes and maintains your child's care plan, and serves as your go-to contact when you're not sure who to call.
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Will I have the same Care Coordinator over time?
We aim to provide continuity. Your family will work with a consistent member of our CC team so they can build a real understanding of your child's needs and history. Our Care Coordinators work as a team and may have assistance from their teammates to provide the highest level of care.
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Is Care Coordination covered by insurance?
Care Coordination services are generally covered as part of your child's overall care at TCC. Contact our billing team at 503-535-1458 for questions about your specific coverage.